How do I express all that has happened in the past two weeks. It feels as though we have been on a long arduous journey filled with many ups and downs. But in reality it has only been a few short days.

The last I posted my husband had just left on the trip on a trip with his aging Aunt and Uncle. They have been wanting to go back to Ohio to visit their son , they are concerned about their health and the lack of time they may have left ( She has recently found out that her cancer has returned ) so they wanted to go on this trip while they still can. A few weeks earlier they went to the coast on a trial run . well they decided that they didn't feel comfortable going alone. They really wanted us to go along with them. We have felt really torn. wanting to go but also not wanting to leave here with the situation with the babies. So we decided that he would go, towing our little truck behind the motor home and I would stay home . Cliff left here (Wa.) on Friday August 28.
Our dog has been crying for two days. She has gotten so used to us both being home in the evening that she won't eat dinner until we are both here. (Silly girl).

Sunday: August 30 ,
Church starts here at 9am, I didn't get up in time to go. I am glad I was home, because about an hour later Dale (my son) called and said that they couldn't get Jayden to eat. He had had a seizure on Friday ( they were warned that those may occur) and they couldn't get him to eat much since then. I asked if they wanted me to come over and they said yes. We ended up spending the next few hours in the hospital as they checked him out. The kids did have them give him an IV so he had some fluids, but that was all they would do for them. the hospital considers this a natural progression of his condition. So they sent him home. The kids were having a really hard time with this...they just felt like they needed to be doing something. I discussed with them about their calling the Hospice nurse back in to put the feeding tube back in .( at least they felt like they were doing all they could reasonably do . ) Left them to discuss it together. Dale asked a couple times throughout the day when Dana his sister was going to be here. (not until the 17Th)
Cliff and I talked that night, both our hearts were breaking, wanting to be both places together.

Monday: Aug 31,
Called Dana our daughter in Albuquerque . Told her what was happening and we discussed the options of waiting to fly up on the 17Th as planned or coming now... we both felt she shouldn't wait. I went to work and left her my card #, and said do whatever needs to be done. Her sweet husband told her to go and all would be fine. She pulled the kids out of school, took the kids and started the drive up here on Tuesday. ( Her husband rented a car the rest of the week for himself).
...The hospice nurse came out at 2pm . the kids asked both the grandmothers to be there while she talked with them. This time it was a better experience for them. She put a feeding tube in and showed them what to do. She told them not to be surprised if there isn't much change.

Tuesday: Sept. 1, Dana arrived in Salt Lake.She Stayed with my parents for the night. We had both talked with them earlier and told them to pack a bag if they would like and come up with her.Being spontaneous people they took her up on the offer. Gave her someone to talk to on the way and other hand to help her with her three kids.

Wed. Sept 2,
I worked until Dana came into town around 4pm. She stopped by the store to let me know they were here. My boss let me leave then. Dana went on home with Dad and the kids , I went with Mom and my granddaughter to get Pizza. We were almost to the house when Dale called , I handed to phone to my Mom and she talked to Dale , He got emotional cause he didn;t know they were coming. Asked what was for dinner , and said they would be right out.
Dale and Lori came out with the babies and we were able to visit with them for the rest of the evening. What a special night. Very relaxed . just nice to be together and not have to hurry to be somewhere. Mom and Dad were able to visit as long as they wanted with their great grand babies.

Thursday: Sept 3,
The kids called us in the afternoon and said that Jayden wasn't doing well. If anyone wanted to see him and hold him or see them to meet with them at I-hop banquet room. ( i know that sounds odd, but our other son works there and his boss has offered the room for other occasions. it gave them a place for people to come and go as they please .very sweet of them)
so family and friends were able to hold him and say their goodbyes . A long emotional evening. Afterwards Dale asked if Dana , and I would come over to be with them. ( they didn't want to be alone). We got the kids to bed, left them in my parents capable hands and went over for the rest of the night.

Jayden William Jones went to be with his Heavenly Father at 3:50 am on Friday Sept.4.