my youngest son and his sweetheart called us over on tuesday wanting us to take some family pictures before she popped. Two days later on Thursday morning at 7:53 and 7:54 am the twins were born.
Jayden William (7 lb,4 oz), and Alexis Ann-Marie (5 lbs 0.5 oz) .
they were born at 34 weeks. Alexis is doing well, and Jayden is really doing quite good for his condition. they were told at about 20 weeks that there was a problem with Jaden . His head had alot of fluid in it and they didn't expect him to live to term, if he did live to not expect him to live for more than a few days.
he was given an ultrasound the first day, which just confirmed what they already were seeing . Hydrosepholus (water on the brain) which is serious enough. Friday they did an MRI to get a better image and found it was more serious. He has a condition called Holoprosensephaly (Alobar type) which is the most severe. this is when the brain doesn;t develope and divide into two seperate lobes. This is considered fatal and so they are given care and comfort. can live for a The kids made the decision to have a No resussatation order. One of the hardest things for a young parents to have to do.needless to say they are emotionally exhausted . these children may live a week, a month, many live for 4 months and some even up to a year. They are already learning to appreciate and cherish every moment.
As of Sunday night both babies are doing well enough to go into the nursery. Mom will be released on Monday and can then stay with them for their remainder of their stay in the hospital.
Glad to see the pictures. Liked the story.
ReplyDeleteDad said he had already read that story before,but thought it was a good analogy of what they will have to remember. Dad said to be able to see the baby and love it,and be able to give it a name; they will be able to have those memories forever and know that it was a special child.Also that it bears the same name William as his father and greatgrandfather.
any comments on the tiger head yet?
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