By Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a
disability-to try to help people who have not shared that unique
experience to understand it, to imagine how it would feel.
It's like this...
When You're going to have a baby, it's like planning a fabulous
vacation trip- to
plans. The coliseum, Michelangelo�s David. The gondolas of
learn some handy phrases in Italian. It's all very exciting.
After a few months of eager anticipation, the day finally arrives.
You pack your bags and off you go.
Several hours later, the plane lands. The stewardess comes in and says
"Welcome to
"
I'm supposed to be in
"But there's been a change of plans," says the stewardess.
"They've landed in
The important thing is you haven't landed in a horrible, disgusting,
filthy place full of pestilence, famine and disease. It's just a
different place.
So you must go out and buy new guide books. And you must learn a whole
new language. And you will meet a whole new group of people you would
have never met.
It's just a different place. It's slower paced than
than
you look around and you begin to notice that
But everyone you know is busy coming and going from
they're all bragging about the wonderful time they had there.
And for the rest of your life you will say,
"Yes, that's where I was supposed to go.
That's what I had planned."
And that pain will never, ever go away because the loss of that
dream was a very significant loss.
But if you spend your life mourning the fact that you didn't get to
things about
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